There’s running a marathon… and then there’s doing it pushing a buggy. Sinead Tighe from the Kiltipper Road in Tallaght, Dublin, took on the 2017 Dublin City Marathon while pushing her son Daniel, nine, in a running chair.

Daniel is one of only 40 children living in Ireland with Sotos Syndrome, a rare genetic disorder that affects sensory processing and growth. It means that by the age of 10 months he was the size of a three-year- old and it’s estimated he’ll grow to over 7ft.

By the time they got to the start line on 29 October, Daniel weighed between six-and-a-half and seven stone, and was over 5ft 1ins tall.

Sinead needs to raise €100,000 to make the necessary modifications to their home and the marathon was one of their main fundraising events.

Lord’s Taverners Ireland will be supporting Daniels Voyage by providing funding support for a customised running chair. This support was made possible by the 2017 Golf Classic at Castle Golf Club which was superbly organised by Keith Cairns with attendance from a wide selection of our members and friends.

We wish Sinead, Daniel and family well in their fundraising efforts and all support for them from the Lord’s Taverners Ireland community would be greatly appreciated.

You can read more about Daniel at and can donate at

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